Release date: Wednesday – January 4, 2023
Archive Episode 113: Stories of Parenting with a Disability
Description: Join us for an engaging conversation on parenting with a disability and a new book on the topic, “A Celebration of Family: Stories of Parents with Disabilities,” with our four guests:
Guests:
- Dave Matheis, Kentucky Coalition for the Rights of Parents with Disabilities
- Jason Jones, Disability Specialist, Human Development Institute, University of Kentucky
- Kimberly Tissot, President and Chief Executive Officer, ABLE-South Carolina
- Kara Ayers, PhD. Associate Professor, Associate Director, University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD), Cincinnati Children’s Hospital Medical Center, Division of Developmental and Behavioral Pediatrics
- Host: Janice Baldon-Gutter, Program Outreach Coordinator, Diversity, Equity, Inclusion, Southeast ADA Center
Contents
- Featured in this Episode
- Legal Rights for Parents with a Disability
- Persons with Disabilities Right to Parent Act
- Guidance for Parents with a Disability
Featured in this Episode
- Book: A Celebration of Family: Stories of Parents with Disabilities
Authors: Dave Matheis with the Kentucky Coalition for the Rights of Parents with Disabilities and Jason Jones with the Human Development Institute at the University of Kentucky. Available on Amazon.
Link: amzn.to/3VxscuJ - University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)
Link: ucucedd.org - Kentucky Coalition for the Rights of Parents with Disabilities
Facebook Page: facebook.com/kycrpd - Human Development Institute at the University of Kentucky
Lexington, Kentucky
859-218-5974 (voice)
Link: hdi.uky.edu - Video: MHDD Webinar Series: Parenting with Co-occurring Mental Health and Developmental Disabilities
Several parents interviewed for the book “A Celebration of Family” were invited to be panelists on a recent webinar hosted by the MHDD National Training Center to speak about parenting while disabled. Presented May 10, 2022 [YouTube Captioned Video: 1:28 hours]
Source: Mental Health and Developmental Disabilities (MHDD) National Training Center
Link: youtu.be/iCzeyNIhq4A
Legal Rights for Parents with a Disability
- Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children
Source: National Council on Disability (NCD) (September 2012)
Link: ncd.gov/publications/2012/Sep272012 - Toolkit:
Disabled Parents Toolkit (PDF)
Disabled Parents Toolkit (plain language version)(PDF) - Report:
Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children [PDF]
Link: ncd.gov/sites/default/files/Documents/NCD_Parenting_508_0.pdf - Rights of Parents with Disabilities
Source: U.S. Department of Justice (DOJ) (July 2022)
Link: ada.gov/topics/parental-rights - Protecting the Rights of Parents and Prospective Parents with Disabilities: Technical Assistance for State and Local Child Welfare Agencies and Courts under Title II of the Americans with Disabilities Act and Section 504 of the Rehabilitation Act
Source: United States Department of Health and Human Services (HHS) and the United States Department of Justice (DOJ)
Link: archive.ada.gov/doj_hhs_ta/child_welfare_ta.html - Parents with Disabilities in Child Welfare Agencies and Courts
Gives data on parents with disabilities in the United States and the risks they face relating to the child welfare system as well as information about the ADA.
Source: ADA National Network (2016)
Link: adata.org/factsheet/child-welfare - Article: The Supreme Court Ruling That Led to 70,000 Forced Sterilizations
Source: National Public Radio (March 7, 2016)
Link: npr.org/sections/health-shots/2016/03/07/469478098/the-supreme-court-ruling-that-led-to-70-000-forced-sterilizations - The Right to Self-Determination: Freedom from Involuntary Sterilization
Includes links to resources on the history of eugenics and sterilization of people with disabilities.
Source: Disability Justice Center
Link: disabilityjustice.org/right-to-self-determination-freedom-from-involuntary-sterilization/ - Britney Spears and Disabiliy [sic] Justice: How One Celebrity Changed the Conversation About Guardianship
12th Annual Disability Justice Seminar [Video with Auto Caption/Transcript (1:31 hours)]
Source: Robins Kaplan Law Firm (May 3, 2022)
Link: robinskaplan.zoom.us/rec/play/crMDB-oYV5bBJ0grcbbhcWCPhf3eSaLT7JZCxoCoAYJ5TxYzZEsOYpFtqqNIS9bmPQ4vpxPrhhiOhV1-.sFA2Za_7nG2udlit - Services for Parents with Disabilities – Child Welfare Information Gateway
Source: U.S. Department of Health & Human Services, Administration for Children & Families, Children’s Bureau
Link: childwelfare.gov/topics/systemwide/service-array/services-disabilities/youth/disabilities - Parenting with a Disability: Know Your Rights Toolkit [PDF – 1,012 KB]
Provides a summary of disability laws that protect families’ rights, along with information on adoption, custody, visitation, family law, and the child welfare system.
Source: Christopher & Dana Reeve Foundation and the National Council on Disability (2016)
Link: ncd.gov/sites/default/files/Documents/Final%20508_Parenting%20Toolkit_Standard_0.pdf - Position Statements: Parents with Intellectual and/or Developmental Disabilities | PDF
Source: The Arc (2011)
Link: thearc.org/position-statements/parents-with-intellectual-developmental-disabilities
PDF Download: thearc.org/wp-content/uploads/2021/05/Parents-with-IDD.pdf - Representing Parents with Disabilities: Best Practice
Source: American Bar Association (ABA) (February 2015)
Link: americanbar.org/groups/public_interest/child_law/resources/child_law_practiceonline/child_law_practice/vol-34/february-2015/representing-parents-with-disabilities–best-practice
Persons with Disabilities Right to Parent Act
On May 11, 2017, South Carolina added a new law, the “Persons with Disabilities Right to Parent Act.” ABLE South Carolina worked with partners including the Department of Social Services (DSS) and Protection and Advocacy for People with Disabilities, Inc. to draft a bill that codified best practices for ensuring the protection of the rights of individuals with disabilities.
Source: ABLE South Carolina
More Information:
- Press Release: Persons with Disabilities Right to Parent Act
NOTE: Scroll down the page to read the press release and see these links to more information.
Link: able-sc.org/resource-library/legislative-updates - Parent Factsheet: Your Rights as a Parent with a Disability [PDF]
Link: able-sc.org/wp-content/uploads/2021/05/Your-Rights-as-a-Parent-with-a-Disability.pdf - Lawyer Factsheet: Representing Parents with Disabilities [PDF]
Link: able-sc.org/wp-content/uploads/2021/05/Representing-Parents-with-Disabilities.pdf - DSS and Child Welfare Professionals Factsheet: Parents with Disabilities and Their Rights [PDF]
Link: able-sc.org/wp-content/uploads/2021/05/Parents-with-Disabilities-and-Their-Rights_DSS.pdf - More Information About the Persons with Disabilities Right to Parent Act
Source: South Carolina Legislature
Link: scstatehouse.gov/sess122_2017-2018/bills/3538.htm - Title 63 – South Carolina Children’s Code – Chapter 21 – Persons with Disabilities Right to Parent Act
Source: South Carolina Legislature
Link: scstatehouse.gov/code/t63c021.php
Guidance for Parents with a Disability
- The Association for Successful Parenting (TASP)
Link: achancetoparent.net - National Research Center for Parents with Disabilities
These resources on variety of topics are useful for parents with disabilities, legal professionals, social workers, and researchers. Available in Spanish/Espanol.
Source: Brandeis University
Link: heller.brandeis.edu/parents-with-disabilities/index.html - Parenting Tips and Strategies from Parents with Disabilities
Available in Spanish/Espanol.
Source: National Research Center for Parents with Disabilities at Brandeis University
Link: heller.brandeis.edu/parents-with-disabilities/support/parenting-tips-strategies/index.html - Disabled Parenting Project
An online community by and for parents and prospective parents with disabilities.
Source: National Research Center for Parents with Disabilities at Brandeis University
Link: disabledparenting.com - Disabled Parenting Project Service Provider Directory
The directory lists health, legal, and social service providers as well as programs that have expressed a commitment to providing competent and welcoming care to disabled parents, prospective parents, and their children.
Source: Disabled Parenting Project
Link: disabledparenting.com/business-directory/ - Podcasts: Parenting Done Differently: Parents with Disabilities
An ongoing series of free podcasts with available transcripts.
Source: Center for Advanced Studies in Child Welfare at the University of Minnesota
Link: cascw.umn.edu/portfolio-items/introduction-to-parenting-done-differently-parents-with-disabilities - Article: How We Treat Disabled Mothers
Source: Medium (May 11, 2017)
Link: medium.com/the-establishment/how-we-treat-disabled-mothers-a765ed94e95a