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Episode 116 Resources: Understanding and Finding Support for Parkinson’s Disease

Release Date: Wednesday – April 5, 2023
Archive Episode 116: Understanding and Finding Support for Parkinson’s Disease

Description: In recognition of National Parkinson’s Month in April, learn about Parkinson’s disease and your health, and your rights under the Americans with Disabilities Act (ADA). According to the Parkinson Association of the Carolinas, Parkinson’s Disease (PD) is a brain disorder affecting nearly 1 million people in the United States. This number is expected to rise to 1.2 million by 2030. Parkinson’s Disease is the second most common neurodegenerative disease after Alzheimer’s Disease.

Guest: Ann Marie Worman, Executive Director of Parkinson Association of the Carolinas (PAC)
Host: Janice Baldon-Gutter, Program Outreach Coordinator for Diversity, Equity, and Inclusion for the Southeast ADA Center
Moderator: Barry Whaley, Project Director of the Southeast ADA Center

Contents

Parkinson Association of the Carolinas
Phone: 1-980-245-2786
Email: pac@parkinsonassociation.org
Link: parkinsonassociation.org

Information from the Parkinson’s Foundation

Resources for Individuals, Families and Caregivers

Resources for Veterans

  • VA Caregiver Support Program
    Call the U.S. Department of Veterans Affairs (VA) Caregiver Support Line (CSL) at 1-855-260-3274 to learn more about available support and to connect with the Caregiver Support Team/Coordinator at your local VA Medical Center.
    Source: U.S. Department of Veterans Affairs (VA)
    Link: caregiver.va.gov/Tips_by_Diagnosis/Parkinsons.asp
  • Camp Lejeune Justice Act of 2022
    This law is part of the Honoring Our Promise to Address Comprehensive Toxics (PACT) Act, which provides health care and other resources to veterans who were exposed to toxic chemicals during military service, including those affected by the water at Camp Lejeune. The Camp Lejeune Justice Act allows veterans and their families to file a Camp Lejeune lawsuit for any injuries arising from the toxic water exposure on base, and it also provides veterans and their families with more time to take legal action over injuries that occurred decades ago.
    Source: Sokolove Law
    Link: sokolovelaw.com/personal-injury/camp-lejeune-water-contamination/justice-act-2022
  • Camp Lejeune Water Contamination Health Issues
    Source: U.S. Department of Veterans Affairs (VA)
    Link: va.gov/disability/eligibility/hazardous-materials-exposure/camp-lejeune-water-contamination
  • Resources for Veterans with Parkinson’s Disease
    Source: Parkinson Foundation
    Link: parkinson.org/living-with-parkinsons/finding-care/veterans
  • Veterans and Parkinson’s Risk: Three Things to Know [PDF]
    Source: Michael J. Fox Foundation
    Link: michaeljfox.org/sites/default/files/media/document/At_Risk_One_Pagers_Veterans_06.29.22.pdf
  • Parkinson’s Disease Research, Education and Clinical Centers
    Source: U.S. Department of Veterans Affairs (VA)
    Link: parkinsons.va.gov/patients.asp
  • VA Disability Compensation for Veterans with Parkinson’s
    Source: American Parkinson Disease Association (APDA)
    Link: apdaparkinson.org/resources-support/living-with-parkinsons-disease/disability/va/

Possible Treatments for Parkinson’s Disease

Parkinson’s Disease Research

Legal Rights and Parkinson’s Disease

ADA Live Episodes on the Needs and Rights of Older Adults

You can access all ADA Live! episodes with archived audio, accessible transcripts, and resources at ADAlive.org. Listen on the SoundCloud ADA Live! channel at soundcloud.com/adalive.
Source: Southeast ADA Center