December 4, 2019
Recording and Transcripts Episode 75: Supported Decision-Making: From Justice for Jenny to Justice for All!
Contents
- Justice for Jenny Hatch Resources
- Supported Decision-Making Resources
- Learn More about Supported Decision Making.
- ADA Live Podcasts
- Webinars
Justice for Jenny Hatch Resources
- Book: Supported Decision-Making: From Justice for Jenny to Justice for All!
Written by Jonathan Martinis and Dr. Peter Blanck
This electronic book is available for purchase on Amazon.com (Kindle). It tells Jenny’s story, including how she lost her rights under guardianship and how she won them back when she showed the court that she uses Supported Decision-Making (SDM) to make her own decisions with help from people she trusts. NOTE: If you need help buying a copy of his book, please e-mail the author, Jonathan Martinis, at jgmartin@law.syr.edu.
Source: Amazon
Link: amazon.com/gp/product/B07YQCK2VX - Jenny Hatch Justice Project
Provides advocacy, information, research and education by giving people with disabilities, families, advocates, attorneys, professionals the tools they need to protect and promote the rights of people with disabilities to make their own choices and determine their paths and directions in life.
Source: Jenny Hatch Justice Project, Quality Trust
Link: jennyhatchjusticeproject.orgHow to Contact the Jenny Hatch Justice Project
Phone: 202-448-1448
Email: Contact Us - Justice for Jenny Trial – Legal Documents and Testimony
After a year of litigation and six days of trial, Jenny Hatch won the right to make decisions for herself, using Supported Decision-Making to direct her life to the maximum of her abilities and choose where to live, what to do and who to see.
Source: Jenny Hatch Justice Project
Link: jennyhatchjusticeproject.org/trial
Supported Decision-Making Resources
- National Resource Center for Supported Decision-Making
This project brings together many partners to ensure that all relevant stakeholder groups work together including older adults, people with intellectual and developmental disabilities (I/DD), family members, advocates, professionals and providers.
Source: Quality Trust
Link: supporteddecisionmaking.org - Supported Decision Making Resource Library
Source: The Arc of Northern Virginia
Link: thearcofnova.org/programs-services/sdm-resource-library - Supported Decision Making Resource List
Source: Southeast ADA Center
Link: adalive.org/episode31_resources - FAQs about Supported Decision-Making
A list of Frequently Asked Questions (FAQ) and answers about supported decision making and the legal rights of people with disabilities. (PDF file, 3 pages)
Source: American Civil Liberties Union (ACLU)
Link: aclu.org/other/faqs-about-supported-decision-making - Brainstorming Guide to Supported Decision-Making
This tool can help people think about the ways they are already using supported decision-making, and think about new ways it could help the person with a disability learn to make their own safe, informed choices. (PDF file, 3 pages)
Source: American Civil Liberties Union (ACLU)
Link: aclu.org/other/brainstorming-guide-supported-decision-making - Guardianship Laws in My State
Learn more about supported decision-making in your state.
Source: Quality Trust
Link: supporteddecisionmaking.org/states - National Guardianship Association Position Statement on Supported Decision-Making
(PDF file, 2 pages)
Source: National Guardianship Association
Link: guardianship.org/wp-content/uploads/2017/07/SDM-Position-Statement-9-20-17.pdf - Guardianship and Supported Decision-Making Resources
Source: American Bar Association
Link: americanbar.org/groups/law_aging/resources/guardianship_law_practice - Disability and Guardianship Project (California)
Their mission is to promote access to justice for adults with cognitive and communication disabilities who are involved in guardianship proceedings and to promote viable alternatives to guardianship.
Source: Spectrum Institute
Link: spectruminstitute.org/guardianship
Learn More about Supported Decision Making
- Book: Supported Decision-Making: Theory, Research, and Practice to Enhance Self-Determination and Quality of Life
Written by Karrie Shogren, Michael Wehmeyer, Jonathan Martinis and Peter Blanck
This textbook explains factual research on critical elements of supported decision-making and the applications of supported decision-making that enhance outcomes, including self-determination and quality of life. (2019)
Source: Amazon
Link: amazon.com/Supported-Decision-Making-Self-Determination-Cambridge-Disability/dp/1108475647- Book Review
Source: University of Kansas, Life Span institute
Link: lifespan.ku.edu/news/new-book-among-first-to-examine-how-people-with-disabilities-can-take-legal-decisionmaking
- Book Review
- Article: Her Case Opened the Way for People with Disabilities to Reclaim Their Freedom. Now, Her Words Open a Book That Could Help Countless More
Article date: October 14, 2019
Source: Washington Post
Link: washingtonpost.com/local/her-case-opened-the-way-for-people-with-disabilities-to-reclaim-their-freedom-now-her-words-open-a-book-that-could-help-countless-more/2019/10/12/957c8580-ec6f-11e9-9c6d-436a0df4f31d_story.html - Video: Supported Decision-Making: Protecting Rights, Ensuring Choices
A video presentation by Jonathan Martinis. (Captioned, 18:05 minutes)
Source: You Tube
Link: youtube.com/watch?v=Q8Na88Wz90I - Supported Decision Making Pilot Project Final Report [PDF]
Source: The Arc of Northern Virginia (January 2021)
Link: thearcofnova.org/content/uploads/sites/6/2021/02/SDM-Pilot-Project-Final-Report-2.2.21.pdf - Report: Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination for People with Disabilities
This 2018 report looks at guardianship from several angles, including: disability law and policy; the treatment of people with disabilities within the legal system that establishes guardianship; the use of alternatives to guardianship such as supported decision-making; and recommendations about using guardianship and decision-making alternatives within the Americans with Disabilities Act (ADA) with a focus on the integration mandate.
Source: National Council on Disability (NCD)
Link: ncd.gov/publications/2018/beyond-guardianship-toward-alternatives
Webinars and Podcasts
ADA Live Podcasts
- Episode 25: The Interplay between Guardianship and the ADA
Jonathan Martinis discusses the relationship between guardianship and the ADA. Podcast Release Date: October 7, 2015.
Source: Southeast ADA Center
Link: www.adalive.org/episode25 - Episode 31: Supported Decision-Making: Continuing the Conversation
Jonathan Martinis’ appearance on the October 7th edition of ADA Live, discussing “The Interplay between Guardianship and the ADA and Supported Decision-Making” was one of our most popular. Because so many people had questions and comments, we’re having him back to answer some of the most “Frequently Asked Questions” about Supported Decision-Making. Podcast Release Date: April 6, 2016.
Source: Southeast ADA Center
Link: adalive.org/episode31
Webinars
- Supported Decision-Making Three Part Webinar Series (2014)
The Jenny Hatch Justice Project (JHJP) established by Quality Trust for Individuals with Disabilities (who represented Jenny at her trial) hosted a three-part webinar series in collaboration with the Burton Blatt Institute at Syracuse University, and Autistic Self Advocacy Network to increase awareness and understanding of Supported Decision-Making and the implications for policy and practice at a community, state, and national level.
Source: Jenny Hatch Justice Project
Webinars Link: jennyhatchjusticeproject.org/SDM_webinars_2014
More Information and Webinar Series Archives:- Lessons Learned from the Canadian Experience: Supported Decision-Making Models
Link: jennyhatchjusticeproject.org/032614_sdm_webinar - Introduction to Supported Decision-Making
Link: jennyhatchjusticeproject.org/043014_sdm_webinar - Supported Decision-Making: The Next Level of Policy Development
Link: jennyhatchjusticeproject.org/052214_sdm_webinar
- Lessons Learned from the Canadian Experience: Supported Decision-Making Models