Original Broadcast: March 4, 2020
Recording and Transcripts Episode 78: Living with a Disability: Four People Share their Stories
Contents
- Presenters
- Cerebral Palsy Resources
- Brain Injury Resources
- Developmental Disability and Self-Advocacy Resources
- Resources to Start and Develop a Small Business.
- Accessible and Inclusive Communities Resources
Presenters
- Karen Hamilton, Coordinator of the NC ADA Network
(an initiative of the North Carolina Council on Developmental Disabilities); - Jonathan Ellis
- Jean Andersen
- Lisa Byrd
- Lorraine Woodward
North Carolina Council on Developmental Disabilities (NCCDD)
They improve the opportunities and lives of people with disabilities and their families through advocacy, capacity building and systems change.
800-357-6916 (v/tty)
919-527-6500 (v/tty)
Link: nccdd.org
Support these campaigns to raise awareness and promote inclusion of people with disabilities. Check out the resources, artwork, videos, toolkits, and more.
- Developmental Disabilities Awareness Month – March
www.nacdd.org/ddam1/ - Brain Injury Awareness Month – March
www.biausa.org/events/march-is-brain-injury-awareness-month - Cerebral Palsy Awareness Month – March
cerebralpalsynewstoday.com/2017/03/07/honoring-cerebral-palsy-awareness-month/ - Multiple Sclerosis Awareness Week March 8 – 14
www.nationalmssociety.org/Get-Involved/Raise-Awareness - Muscular Dystrophy Awareness Month – September
musculardystrophynews.com/2019/09/06/september-is-mda-national-muscular-dystrophy-awareness-month/
Cerebral Palsy Resources
- United Cerebral Palsy Association (UCPA)
Serves individuals with cerebral palsy and other disabilities, their families and communities in the U.S. and Canada. UCP affiliates provide services and support in local communities, serving the unique needs of people with disabilities in their regions.
Phone: (202) 776-0406
Link: ucp.org - Easter Seals
Easterseals offers hundreds of home and community-based services and supports to more than a million people and families living with a disability each year. They serve a network of 71 nationwide affiliates, plus four international partners in Australia, Mexico, Puerto Rico and Canada.
Phone: 800-221-6827 (toll-free)
Link: easterseals.com
Brain Injury Resources
- Brain Injury Association of America
Their nationwide network of chartered state affiliates provides direct support and advocacy for individuals living with brain injury, their friends and family, professionals and the general public.
Helpline: 1-800-444-6443
Find the chapter in your state: biausa.org/find-bia
Link: biausa.org - Brain Injury Resource Center
A non-profit clearinghouse founded and operated by brain injury activists.
Link: www.headinjury.com - 10 Ways to Honor Brain Injury Awareness Month
March is National Brain Injury Awareness Month – a time to recognize the growing prevalence of traumatic brain injuries and help make lives better for individuals who have sustained this kind of trauma.
Source: Mental Help
Link: mentalhelp.net/blogs/10-ways-to-honor-brain-injury-awareness-month - North Carolina Traumatic Brain Injury Program
Information on waivers, resources, and other programs for individuals and families.
Source: North Carolina Department of Health and Human Services
Link: ncdhhs.gov/assistance/disability-services/traumatic-brain-injury - Brain Injury Association of North Carolina (BIANC) Family Help Lines
Toll-Free Statewide: 800-377-1464
Raleigh: 919-833-9634
Traumatic Brain Injury (TBI) Program:
Phone: 919-715-1294
Email: TBIContact@dhhs.nc.gov
Source: North Carolina Department of Health and Human Services - Parent Training and Information Center
There are nearly 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in the US and its territories.
Source: Statewide Parent Advocacy Network (SPAN)
Link: parentcenterhub.org/find-your-center/
Developmental Disability and Self-Advocacy Resources
- Muscular Dystrophy Association (MDA)
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Link: mda.org - The Arc
Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
Link: thearc.org - Intellectual and Developmental Disabilities (IDDs): Condition Information
Source: National Institutes of Health
Link: www.nichd.nih.gov/health/topics/idds/conditioninfo/default - Intellectual and Developmental Disabilities Resources
Source: National Rehabilitation Information Center
Link: naric.com/?q=en/content/intellectual-and-developmental-disabilities-resources - ADA Live Episode 75 Resources: Supported Decision-Making: From Justice for Jenny to Justice for All!
Learn how supported decision-making can improve self-determination and quality of life for people with disabilities.
Source: Southeast ADA Center
Link: adalive.org/episode75_resources
Link: adalive.org/episode75 - ADA Live Episode 73 Resources: Do You Want a Job or a Career? Reflections on National Disability Employment Awareness Month (NDEAM)
Self advocacy helps Liz Weintraub find a career she is passionate about.
Source: Southeast ADA Center
Link: adalive.org/episode73_resources
Link: adalive.org/episode73 - Disability Is Natural
Books, media, posters, articles and more resources to share about disability awareness and inclusion.
Link: disabilityisnatural.com
Resources to Start and Develop a Small Business
- ADA Resources for Businesses
Check out these resources for making businesses more accessible for customers with disabilities.
Source: ADA National Network (ADANN)
Link: adata.org/audience/business - Small Business Administration (SBA)
This federal agency helps Americans start, build, and grow businesses.
Link: sba.gov - Small Business Administration (SBA) Guide for Hiring People with Disabilities
Link: sba.gov/about-sba/organization/hiring-employees-disabilities - Small Business Administration (SBA) Answer Desk
1-800-827-5722 (toll free)
American Sign Language (ASL) interpreter available via videophone at 855-440-4960
E-mail: answerdesk@sba.gov
Link: sba.gov/about-sba/organization/contact-sba
Accessible and Inclusive Communities Resources
- Project Civic Access
This program is a wide-ranging effort to ensure that counties, cities, towns, and villages comply with the ADA by eliminating physical and communication barriers that prevent people with disabilities from participating fully in community life.
Source: U.S. Department of Justice (DOJ)
Link: ada.gov/civicac.htm - Final Rule in ADA Title III Requires Movie Theaters and Cinemas to Provide Closed Captioning
Source: 3Play Media
Link: 3playmedia.com/2019/02/08/final-rule-in-ada-title-iii-requires-movie-theaters-cinemas-to-provide-closed-captioning - Ticketing Fact Sheet
Source: ADA National Network (ADANN)
Link: adata.org/factsheet/ticketing - ADA and Small Business Fact Sheet
Source: ADA National Network (ADANN)
Link: adata.org/factsheet/ada-and-small-business - Customer Service for Business Fact Sheet
Source: ADA National Network (ADANN)
Link: adata.org/factsheet/customer-service-business - ADA Live Episode 10 Resources: Beach Access
Source: Southeast ADA Center
Link: adalive.org/episode10_resources
Link: adalive.org/episode10 - Why Accessibility Matters
Source: BrailleWorks
Link: brailleworks.com/accessibility-matters - America Walks
Source: America Walks
Link: americawalks.org
Helps communities create safe, accessible, and enjoyable walking conditions for all. Provides strategy support, training and technical assistance to statewide, regional, and local organizations. - Every Body Walk! Collaborative
Source: America Walks
Link: americawalks.org/partner-directory/everybody-walk-collaborative-2
National initiative to promote safe, accessible and inclusive places to walk. - Every Ride Counts Campaign Promotes Local Transportation
Promotes the availability and accessibility of transportation options for older adults, people with disabilities and caregivers in communities around the country. Campaign resources include sharable advertising materials, videos, social media, webinars, and more.
Source: National Aging and Disability Transportation Center (NADTC)
Link: nadtc.org/everyridecounts - Easterseals Project Action Consulting
Provides customized training solutions and technical expertise on the Americans with Disabilities Act and accessible transportation for transportation providers, human service agencies, states, regional agencies, tribal nations, and communities with the goal of working together to build accessible communities for all.
Source: Easterseals
Link: projectaction.com