Episode 90 Resources: How Public Health Monitoring During the Pandemic Can Affect Disability and Minority Populations

Featured in this ADA Live! Episode 90

Speakers: Lydia X. Z. Brown and Ridhi Shetty
Center for Democracy & Technology (CDT)
Link: cdt.org

Report: Algorithm-driven Hiring Tools: Innovative Recruitment or Expedited Disability Discrimination? (2020)
When you apply for a job, a computer program called an “algorithm” might decide if you get an interview or if you get hired.
- Plain Language Report [PDF]
- Full Report [PDF]
  Source: Center for Democracy & Technology (CDT)
  Link: cdt.org/insights/report-algorithm-driven-hiring-tools-innovative-recruitment-or-expedited-disability-discrimination/
Report: Challenging the Use of Algorithm-driven Decision-making in Benefits Determinations Affecting People with Disabilities(2020)
Source: Center for Democracy & Technology (CDT)
Link: cdt.org/insights/report-challenging-the-use-of-algorithm-driven-decision-making-in-benefits-determinations-affecting-people-with-disabilities/
Virtual Research Center – Covid-19 and the Social Sciences
New research, writing, and initiatives relating to the Coronavirus crisis.
Source: Social Science Research Council (SSRC)
Link: covid19research.ssrc.org

Just Tech COVID-19 Rapid Response Grants
These new research projects will look at the effects of COVID-19 on society and the role of technology in responding to COVID-19, and focus on issues of power, inequality, and social impact.
Source: Social Science Research Council (SSRC)
Link: www.ssrc.org/fellowships/view/just-tech-covid-19-rapid-response-grants/grantees/
Google Scholar Webpage for Dr. Paul Harpur
Source: Google
Link: scholar.google.com.au/citations?hl=en&user=6Y47my0AAAAJ

HIPAA Announcements Related to COVID-19
This webpage includes Bulletins, Notifications of Enforcement Discretion, Guidance, and Resources that help explain how patient health information may be used and disclosed in response to the COVID-19 nationwide public health emergency. Some documents are available in Spanish.
Link: www.hhs.gov/hipaa/for-professionals/special-topics/hipaa-covid19/index.html
COVID-19 Response Resources: Tools and Resources for the Health IT and Clinical Community
Link: www.healthit.gov/coronavirus
Health Information Privacy in Emergency Situations: Preparedness, Planning, and Response
Link: www.hhs.gov/hipaa/for-professionals/special-topics/emergency-preparedness/index.html
Civil Rights and COVID-19
Link: www.hhs.gov/civil-rights/for-providers/civil-rights-covid19/index.html
Civil Rights Emergency Preparedness
More information about how nondiscrimination laws apply during an emergency.
Link: www.hhs.gov/civil-rights/for-individuals/special-topics/emergency-preparedness/index.html

The Office of the National Coordinator for Health Information Technology (HealthIT.gov)
Link: www.healthit.gov
Guide to Privacy and Security of Electronic Health Information
The Guide helps health care providers ― especially Health Insurance Portability and Accountability Act (HIPAA) Covered Entities and Medicare Eligible Professionals from smaller organizations ― better understand how to integrate federal health information privacy and security requirements into their practices. (PDF, 62 pages; Revised 2015)
Link: www.healthit.gov/topic/health-it-resources/guide-privacy-security-electronic-health-information
Health Information Technology Information for Professionals
Includes information on cloud computing and links to the HIPAA Privacy Components of the Privacy and Security Toolkit
Link: www.hhs.gov/hipaa/for-professionals/special-topics/health-information-technology/index.html
Privacy, Security and HIPPA
Source: Health IT and the U.S. Department of Health and Human Services (HHS) Office of Civil Rights (OCR)
Link: www.healthit.gov/topic/privacy-security-and-hipaa

Legal Issues about Privacy and Technology
Source: American Civil Liberties Union (ACLU)
Link: www.aclu.org/issues/privacy-technology
Medical and Genetic Privacy
Source: American Civil Liberties Union (ACLU)
Link: www.aclu.org/issues/privacy-technology/medical-and-genetic-privacy
Webcourse: Introduction to Public Health Surveillance
Free public web course and resources provide an overview of public health surveillance systems and methods.
Source: Centers for Disease Control (CDC)
Link: www.cdc.gov/training/publichealth101/surveillance.html
Public Health Surveillance at CDC
Source: Centers for Disease Control (CDC)
Link: www.cdc.gov/surveillance/improving-surveillance/Public-health-surveillance.html
Article: Health Policy and Privacy Challenges Associated With Digital Technology
Source: National Library of Medicine
Link: www.ncbi.nlm.nih.gov/pmc/articles/PMC7348687/
Health Data Privacy: Updating HIPAA to Match Today’s Technology Challenges
Source: Harvard University
Link: sitn.hms.harvard.edu/flash/2019/health-data-privacy/

Disability and Health Fact Sheet (December 2020)
Source: World Health Organization (WHO)
Link: www.who.int/news-room/fact-sheets/detail/disability-and-health
Healthy People 2020: Disability and Health (October 2020)
Source: U.S. Department of Health & Human Services (HHS)
Link: www.healthypeople.gov/2020/topics-objectives/topic/disability-and-health
Disability in Public Health: Data and Surveillance Resources
Note: This webpage includes broken links, but information still may be useful.
Source: Association of University Centers on Disabilities (AUCD)
Link: disabilityinpublichealth.org/data-and-surveillance-resources/
Enriching Our Knowledge: State and Local Data to Inform Health Surveillance of the Population with Intellectual and Developmental Disabilities (2019) – Report [PDF, 43 pages]
Source: Administration for Community Living (ACL)
Link: acl.gov